tag:blogger.com,1999:blog-837201606358940799.post5920698928016423654..comments2023-03-24T05:43:17.732-05:00Comments on Everyday Underwear: You're Kidding Me? What the...? I Have What?Hiyacynthiahttp://www.blogger.com/profile/07648329765845940034noreply@blogger.comBlogger43125tag:blogger.com,1999:blog-837201606358940799.post-28430415325172908302013-03-22T01:59:49.762-05:002013-03-22T01:59:49.762-05:00Today, I went to the beach with my kids. I found a...Today, I went to the beach with my kids. I found a sea <br />shell and gave it to my 4 year old daughter and said "You can hear the ocean if you put this to your ear." She <br />put the shell to her ear and screamed. There was a hermit crab <br />inside and it pinched her ear. She never wants to go back!<br />LoL I know this is totally off topic but I had to tell someone!<br /><br /><br /><br />My blog ... <a href="http://widyawisatabanten.com/" rel="nofollow">http://widyawisatabanten.com/</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-80314754478563580102012-11-03T19:48:03.260-05:002012-11-03T19:48:03.260-05:00Melody, this disease is funny. Some days I feel li...Melody, this disease is funny. Some days I feel like I'm dying - or close to death - and other days I feel so normal I feel guilty even saying I have anything wrong with me. The bad days erase my guilt, though. I still have my sense of humor... I just need the time now to put it into blog posts! Ha ha...Cindy Brownhttp://twitter.com/hiyacynthianoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-58386220428202062912012-11-03T19:45:30.424-05:002012-11-03T19:45:30.424-05:00Lynne, I had no idea that part of Lyme was Arthrit...Lynne, I had no idea that part of Lyme was Arthritis and now I am feeling it - unfortunately mostly in my elbows, forearms, wrists, and hands - making it hard to spend time on the computer :0( I am not liking this at all and hope it goes away, but this and the muscle weakness in my thighs has been my most persistent symptom. I go see the Infectious Disease doc in 10 days. Can't wait to see what he says and if he can treat my RA symptoms or if I have to go see a Rheumy. I really hate this and really sympathize with you, Chris Dean, and others who are dealing with other similar health troubles. This sucks. I can now say that I literally "feel your pain" - LOL!Cindy Brownhttp://twitter.com/hiyacynthianoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-14649676071702208142012-11-03T19:40:16.974-05:002012-11-03T19:40:16.974-05:00Hey, Karen, the vials - are they swallowed liquid ...Hey, Karen, the vials - are they swallowed liquid or injection?Cindy Brownhttp://twitter.com/hiyacynthianoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-39462232878403703342012-10-22T10:24:12.924-05:002012-10-22T10:24:12.924-05:00Wow- how absolutely awful, Cindy. I'm so sorr...Wow- how absolutely awful, Cindy. I'm so sorry that you've had to endure such frightening and confusing symptoms. I'm glad that there is a diagnosis now, and that you have found a doc. I'll pray with you that the course of treatment will be able to knock it out of the ball park - and that there will be no permanent damage. *sigh* Life can be so hard, can't it? Glad that you are able to still laugh - you will need it to keep a healthy balance, I think...Melody Loweshttp://twitter.com/MelodyLowesnoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-60860131170290914982012-10-15T07:46:44.510-05:002012-10-15T07:46:44.510-05:00I knew of Lyme disease, but knew little of the spe...I knew of Lyme disease, but knew little of the specifics. All I knew was that it can really screw some people up. I knew nothing about the rash and didn't know that some people don't even get the rash or that it can come in different forms. Thank goodness I do a lot of research on the internet. I searched many, many pictures of the rash and noted that a couple of them were almost just like the "cellulitis" I had. That cemented the idea for me that I MUST be checked for Lyme. Perhaps I'll become an advocate ;0)Cindy Brownhttp://www.everydayunderwear.com/noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-56169013559459872472012-10-13T15:44:16.447-05:002012-10-13T15:44:16.447-05:00I'm so sorry you have to go through this, but ...I'm so sorry you have to go through this, but thank you for sharing your story. I wouldn't have realized that was a "bulls eye rash." I'll have a better idea what to watch for.Cynthia Meentshttp://www.commonplacecrazy.com/noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-72089892877683222592012-10-01T20:22:36.232-05:002012-10-01T20:22:36.232-05:00Thank you, Nancy. Everyone's kind words make a...Thank you, Nancy. Everyone's kind words make a difference. I hope I never lose my ability to write or my sense of humor. They are both so important to me. I'm sure you know what I mean. Writing is a true love for most of us, isn't it?Cindy Brownhttp://www.everydayunderwear.com/noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-62887040019070357542012-10-01T20:18:57.488-05:002012-10-01T20:18:57.488-05:00Thanks so much!Thanks so much!Cindy Brownhttp://www.everydayunderwear.com/noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-49920461369306061852012-10-01T20:17:53.848-05:002012-10-01T20:17:53.848-05:00Wow, Karen! Thanks for the info! I was shocked to ...Wow, Karen! Thanks for the info! I was shocked to find out that Lyme is a controversial illness - and not too happy either. I hope I don't have a hard time with it like some do. Seems there are people who are easily cured and those for whom it becomes a nightmare! I am hoping I will be a success story ;0) and I will look into those things you mentioned in your comment for sure!Cindy Brownhttp://www.everydayunderwear.com/noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-43535233976412892452012-10-01T19:46:28.405-05:002012-10-01T19:46:28.405-05:00Me too! I am hoping for no permanent damage and no...Me too! I am hoping for no permanent damage and no relapse.Cindy Brownhttp://www.everydayunderwear.com/noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-13387206795686600652012-10-01T11:53:48.008-05:002012-10-01T11:53:48.008-05:00I have wondered about whether I've had it for ...I have wondered about whether I've had it for most of my adult life or not. I've always been exposed to ticks and some of my symptoms have presented themselves as early as my early 20's. I am hoping the doxy just knocks it out. I am a little better already. I am just thrilled for the diagnosis, that's a fantastic start.Cindy Brownhttp://www.everydayunderwear.com/noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-21398033672151247842012-09-30T19:37:00.765-05:002012-09-30T19:37:00.765-05:00I'm sorry to hear this, but for me at least, h...I'm sorry to hear this, but for me at least, having the diagnosis is always a relief. If the doctors in your area don't seem to be helping, you should make the trip to CT or MA and see a specialist who deals with this disease all the time.<br /><br /><br />My son had Lyme Arthritis, which is a milder form and was treated with antibiotics. My husband had Lyme Disease too, also successfully treated with antibiotics. I'm surprised the first dose didn't treat it well for you.<br /><br /><br />You do know the markers always appear in your blood, right? But the tests can show if the markers are from old activity or recent activity. You should ask just to make sure that the markers are reflecting recent activity, just to make sure there isn't more than one needle hiding in your haystack, ya know?<br /><br /><br />Best of luck and huge big virtual hugs being sent your way.Cindy Dwyernoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-54690099745681443232012-09-30T14:17:04.514-05:002012-09-30T14:17:04.514-05:00Sorry to hear that you have this disease. As someo...Sorry to hear that you have this disease. As someone you has an autoimmune disease I hope you never get one. There is no cure. I'm sure you will be in good hands with a specialist and you will be on the road to recovery soon!Debnoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-65543179626288507262012-09-28T19:40:49.005-05:002012-09-28T19:40:49.005-05:00OMG I wish I had come here sooner!! I was diagnose...OMG I wish I had come here sooner!! I was diagnosed in 2009 and don't know how long I had it. I was diagnosed by a naturopath using the CD57 test (google it). I was treated by boosting my immune system and by using something called borrelia remedy from Deseret Biologicals. http://www.desbio.com/series-therapy.html I was never given antibiotics. I am doing really well! I would suggest calling Dr. Jonne Groves in Madison, CT. 203-245-7800. Lyme is a highly controversial illness.0.KCLAnderson (Karen)noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-90718404475274756772012-09-28T18:06:27.746-05:002012-09-28T18:06:27.746-05:00What a nightmare! So happy you finally got a corre...What a nightmare! So happy you finally got a correct diagnosis. Now you can begin to heal. Here's to a complete and speedy recovery.Diane Turnernoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-27574145461728715632012-09-28T17:49:34.881-05:002012-09-28T17:49:34.881-05:00Cindy, I am so sorry you are having to go though t...Cindy, I am so sorry you are having to go though this. You are fortunate to have that wonderful sense of humor and the ability to put words and emotions down on paper (the computer) so beautifully.......Both got me through a bout with cancer a while back. My heart goes out to you and I pray that you have a speedy and full recovery. Hang in there girl.<br />Hugs, NancyNancy Hinchliffnoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-18396345061492666482012-09-28T12:58:22.811-05:002012-09-28T12:58:22.811-05:00Oh dear, I do remember suggesting it was peri-meno...Oh dear, I do remember suggesting it was peri-menopause. I'm thankful you got a diagnosis. I know how frustrating it is to know something is wrong but fall prey to doubting yourself when everything comes back negative. I had my first test for arthritis when I was thirteen, but every test came back negative for years. Even my c-reactive protein which indicates inflammation is normal. I've had many tests for Lymes, and thyroid problems-all normal. A rheumatologist finally confirmed I had RA when I was 46. Took them long enough. And that was only because my sister was finally diagnosed after her hands became deformed, developed nodules, and had both knees replaced because of OA. Now I'm taking my 16 year-old to see RA doc for chronic ankle pain-same as I had. Cindy, I hope you find relief and complete remission soon. Sending positive vibes your way! XOXOlynnefavreaunoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-15894493366051264902012-09-28T11:10:14.601-05:002012-09-28T11:10:14.601-05:00Not contagious. You may virtual hug me ;0)Not contagious. You may virtual hug me ;0)Cindy Brownhttp://www.everydayunderwear.com/noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-71020449455690061912012-09-28T11:09:31.397-05:002012-09-28T11:09:31.397-05:00I just really want people to know about it. There ...I just really want people to know about it. There are so many symptoms - it's crazy! I knew about the disease, but it wasn't until I searched "speech problems" on the internet that I found that was a symptom of advanced Lyme, then noted the other symptoms and I had nearly all of the symptoms of all the stages at one point or another. I was shocked! Thank goodness I made my doc test me or I might be suffering even longer. I'm hoping there's no permanent damage already.Cindy Brownhttp://www.everydayunderwear.com/noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-38026634245229868392012-09-28T10:32:04.901-05:002012-09-28T10:32:04.901-05:00So sorry for your woes, but thank you very much fo...So sorry for your woes, but thank you very much for the information. I live in a high-tick (not to be confused with high-tech!) area and like you have pulled the varmints off me my whole life. Now, thanks to your post, I will know exactly what to look for. Best of luck to you.<br />Dianenoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-90911398297524846792012-09-28T09:49:15.813-05:002012-09-28T09:49:15.813-05:00Cindy, This is not very funny and I hope it goes a...Cindy, This is not very funny and I hope it goes away. I have heard this can be very annoying and last a long time. Honestly great post but the more I read it the more I was convinced you're a hypochondriac. Just kidding. Hugs to you. Wait, are you contagious?The Desert Rocksnoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-27218239392724054812012-09-28T08:29:41.530-05:002012-09-28T08:29:41.530-05:00Thanks, I'm going to try to make sure that hap...Thanks, I'm going to try to make sure that happens!Cindy Brownhttp://www.everydayunderwear.com/noreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-48941741554899172592012-09-28T08:25:02.264-05:002012-09-28T08:25:02.264-05:00Oh, Cindy. I'm sending you virtual hugs. I'...Oh, Cindy. I'm sending you virtual hugs. I'm so sorry you had to go through all this. I do know someone who has Lyme Disease. I went to high school with her. She had good days and bad days. For your sake, I hope the good days come in plenty.KellyHashwaynoreply@blogger.comtag:blogger.com,1999:blog-837201606358940799.post-49560436754082883472012-09-28T08:16:32.166-05:002012-09-28T08:16:32.166-05:00Like many with auto-immunes, it took me a year and...Like many with auto-immunes, it took me a year and a half to get diagnosis in the end. Or at least six months if you look at it from when I started going to the docs with my first round of complaints earlier this year. I really hope they come up with the technology like on Star Trek where they just whiz that thing over your body once or twice and it analyzes your illness right then and there. Come on, technology! LOL!Cindy Brownhttp://www.everydayunderwear.com/noreply@blogger.com